Registry for the Advancement of DBS in Parkinson’s Disease

RAD-PD is a quality improvement patient registry in the United States and Canada, representing a new era of investigation into DBS therapy for Parkinson’s disease.

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Background & Significance

Deep brain stimulation (DBS) is the surgical standard of care for advanced Parkinson’s disease (PD), with over 100,000 patient implanted worldwide. Despite this, many unanswered questions remain about the best practices related to DBS, the incidence and risk factors for adverse events, the determinants of outcomes disparities, and the health economics of DBS. RAD-PD seeks to fill these knowledge gaps in an effort improve outcomes for patients receiving DBS for PD.

Registry Design

A combination of patient reported outcomes, clinician-administered scales, imaging and DBS related details will be systematically collected over five years of DBS therapy. Ten participating centers were selected to start enrolling patients in the first year, and ten additional centers will be added in year two with the potential for more to join in the future.

Physican Investigator CranialCloud Portal

Goals of RAD-PD

Questions

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